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July 21, 2006     Barnstable Patriot
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The latest on Rett syndrome - Rett syndrome, which affects females almostexclusively,presentsasaninabilityto speak and walk, development of incessant hand-wringing,andautisticfeatures.Tonight at 8, Dr. Huda Y. Zoghbi of the Howard HughesMedicalInstituteandBaylorCollege of Medicine, will discuss this neurological disorder during a free lecture at the Marine Biological Laboratory Lillie Auditorium on MBL Street in Woods Hole. Free seminar on cholesterol Break the cholesterol code and learn the myths that surround it July 27 at 7 p.m. when Dr. Kristine L. Soly discusses managingtriglyceridelevels,assessingfor a heart attack, reducing risk and more at the Holistic Cardiology Learning Center of Cape Cod,923 Route 6A inYarmouthport. Reservations needed: 508-362-5925. Driving and dementia Boston University Medical Center is looking for residents who are interested in receiving free educational information on thetopic ofdrivinganddementia. Fordetails and to sign on, call 617-414-1188. Rehabilitation Hospital offerings RHCI, 311 Service Road in East Sandwich, hosts a fibromyalgia support group the fourth Thursday of the month. A stroke support group meets the second Wednesday of the month from 1:30 to 3:30 p.m. The VNA Mobile Health Link Van will be at RHCI the first Monday of the month from noon to 4:30 p.m. for free health screenings. The aphasia commu- nity group meets the first Tuesday of the month from 2 to 3:30 p.m. FoodAddicts in RecoveryAnonymous meets Sundays from 9:30 to 11 a.m. The Well-Spouse Support Group meets every third Thursday of the month at 7 p.m. Healthy Hearts outpatient cardiac rehabilitationprograms are offered at 6 a.m. The MS Support Group meets the third Sunday of the month. Post polio support group meets the third Saturday of each month at 10 a.m. Hearingscreenings, held second Wednesday of each month by appointment. RHCI offers a Stroke Peer Visitation Program. Call for details or if you want to volunteer as a peer visi- tor. A mild brain injury support group meets the third Saturday of each month from 2 to 4 p.m. Call 508-833-4000 for other programs and details. Take a break and relax Kim Hudson offers traditional Swedish relaxation massage, healing hot stone, yoga, Nia dance and more in your home or her Osterville office. Call 508-428-2734 for information. Asthma Support Group Dr.PaulSklarew leadsanasthmasupport group at the Allergy and Asthma Center of CapeCod,244Willow St.inYarmouthport. | Meetings are every fourth Wednesday in August, October and December. For information, call 508-362-0099. Mended Hearts meets at CCH Members of the Mended Hearts group meet everythirdThursdayat4 p.m.at Cape Cod Hospital in Hyannis to discuss heart disease and share experiences. Those with heartdiseaseandmembersoftheirfamilyare welcometoattend.Call508-385-4313or go to www.capecodmendedhearts.com. j Activities at Yarmouth j Senior Center OnthefirstandthirdMondaysofthemonth at the Yarmouth Senior Center, 528 Forest ! RoadinSouthYarmouth,achangesandloss I support group will meet at 11 a.m. Adult day social program The Barnstable Senior Center on Route 28 in Hyannis hosts the Barnstable Adult I 1 Social DayCare Program,which operates i ' from 9 a.m. to 3 p.m. Monday through ' ' Friday, in an effort to help elders main- tain independence. Call 508-862-4750 for details. Caregiver support in Barnstable Caregivers for seniors are invited to t attend a support meeting at Barnstable Senior Center, Route 28 in Hyannis, every ! other Wednesday from 9:30 to 11 a.m. Call Bobbie Jordan at Elder Services (508-394-4630, ext. 181) to register. HIV/AIDS testing, counseling The Cape Cod Free Clinic &Community Health Center offers free, confidential testing for HIV/AIDS. The tests are available at the health center's Falmouth and Mashpee offices. Appointments are required; call 508-540-2949. Veterans, take note The Department of Veterans Affairs is offering prescription refills over the Inter- net via the VA's MyHealthVet, a personal on-line record system for veterans that tracks not only prescriptions but health records, insuranceand more. For informa- tion, go to www.myhealth.va.gov Support at Independence House Independence House in Hyannis spon- sors adomestic violence support group at theoffice inFalmouth Hospitalon Mondays at 6:30 p.m.; a children's empowerment group on Wednesdays at 5:30 p.m. at the office in Hyannis; and a self-esteem focus group on Thursdays at the Hyannis office at 5:30 p.m. Call 508-771-6507. Health and well-being programs Cape Cod Healthcare's Center For Health Education offers classes such as "Kick Butts," a stop-smoking class; "Heart Healthy Eating;" a walking pro- gram; techniques for relaxation of the mind and body; supermarket shopping; and more.To register, call 877-729-7200 or go to www.capecodhealth.org. Hospice education Tolearn more aboutjust what ahospice is and to be informed about end-of-life services,you can schedule an informative program for your organization presented by Hospice & PalliativeCare of Cape Cod. Call 508-957-0200, ext. 306. A little time for yourself Stop by the Visiting Nurse Association in Dennis on Route 134 to take part in the Youngat Heartexercise program. A minimal fee is charged and a doctor's note is nec- essary. The program is also offered at the Brewster facility. Call 877-267-7700. Driver Rehabilitation Program Those whose driving ability has been compromised by illness, injury or nor- mal aging are invited to take part in the roadSMARTDriver Rehabilitation Program being offered through the Rehabilitation Hospital of the Cape and Islands in East Sandwich. Call 508-833-4000. Women's free health screening The Women's Health Network of the Visiting Nurse Association of Cape Cod incooperation with local healthcare pro- viders is offering free breast and cervical cancer screening services to uninsured , and underinsured, low-income women age 40 to 64. Call 888-557-9994. Dial a line for help Cape Cod Healthcare's mental health arm, Behavioral Health Services of Cape Cod Healthcare, has a one-stop ' telephone line (888-986-4BHS) allowing easier access to comprehensive mental health services. The service offers help for those dealingwith anxiety,depression, substance abuse, and other concerns. VNA has home health technology TheVisitingNurseAssociationofCapeCod offersin-hometelemonitoringtechnology.The Honeywell HomMed monitors collect vital signs including heart rate, blood pressure, oxygen saturation and body weight, all in three minutes. Call 800-631-3900. Adult exercise class in Hyannis Get inshapebyjoining Livefor Lifeclasses offered by the YMCA Tuesdays and Thurs- days from noon to 1 p.m. at the Barnstable SeniorCenter,825FalmouthRoadinHyannis. 1 Admission is $25 per month. VNA offers van, interpreters, more The Visiting Nurse Association of CapeCodhasa28-foot vanthat travels throughout the Cape to link under- i served individuals and families with | health education and preventative screening services. Blood pressure, cholesterol, blood sugar and more may be tested at the van. Another uniqueservicetheVNA offers isinter- pretation and tele-interpretation in ] five languages: Portuguese, Spanish, HaitianCreole,Persianand Italian.A Young at Heart exercise program is offeredinYarmouthPort at Kingsway throughAug.9.Signuptohave aclass togetyourstafftrainedinChokeSaver Certification. VNA has exercise class and more Join aYoungat Heart exercise class for a 10-week run and improve your ticker in just one hour, twice a week. A small fee and doctor's approval are needed. Senior Care Management Services are offered by the VNA. For an assessment of an individual's health care needs, call 877-267-7700. A Young at Heart Senior Weight Training program is held twice a week for 12 weeks. Call 877-267-7700. Bereavement groups The Visiting Nurse Association of Cape Cod Hospice Bereavement Program of- fers a support group designed for men who have lost a loved one. The group meets at the South Dennis office of the VNA, 434 Route 134. Call 800-978-0838 for details. A Bereaved Parents Support Group for those who have lost children meets Mondays at 1 p.m. at the VNA, 67 Ter Heun Drive in Falmouth where volunteers will be available for child care of other children in the family. Call 800- 978-0838. Other bereavement support groups include loss of a pet, parent, grandchild, friend and many others. Call 800-978-0838 for details. Alzheimer's support in Dennis Eagle Pond Rehabilitation and Liv- ing Center of South Dennis hosts an Alzheimer's Support Group on the second Wednesday of the month from 3:30 to 4:30 p.m. Call 508-385-6034. Parents helping parents Parents Helping Parents, a self-help support group, offers free weekly meet- ings for parents to share understanding, information , ideas and support. The Hyannis meetings are held Wednesday evenings. The group is looking for volun- teers with good interpersonal skills. Train- ing is available. Call 800-882-1250. Cancer support in Mashpee Cape Cod Healthcare has a Living With Cancer educationsupport groupthat meets Tuesdaysat the Mashpee Health Center, 5 Industrial Road. Call 508-539-6215. HFAITH BFWWT cuii n ivEruivi PAUL GAUVIN PHOTOS VOLUNTEERS, from left, Beverly Kiernan, Gerry Rowley, Betty Dooling and Betty Halloran process clothing at St. Vincent de Paul outlet on Route 28 in Cotuit, site of the former St. Jude Chapel and "Christmas in July" sale next weekend. CONTINUED FROM PAGE B:1 While the prices of items sold daily is minimal, prices will be even less during the sale next weekend. None- theless, Daly said, "Our income is quite substantial. With it we give aid to so many families who need help paying for heat or rent" in addition to individ- uals with more serious and longer-lasting problems. "And we do this discreetly ... no names," Daly said. People needing help can find it by calling any church or St. Vincent de Paul. It's in the book. The organization collects clothing and other items from donors, assures their cleanliness and worthiness through a process that re- quires about 25 volunteers a day, and remains open through the week for people in the market for good stuff at bargain prices. On Tuesday, the hottest day of the summer so far, the front yard as usual was lined with racks of clothing, various items like chairs, toys and knick-knacks bunched mostly in the refreshing shade of trees. "It's like having a yard sale every day," Daly said. Traf- fic whizzes by on the busy roadway. At 2:30 p.m., there were 16 cars in the large park- ing lot where the tent will be, and a handful of people browsing the outdoor cloth- ing racks, several women, one in a stylish mini-dress, and a few men in casual at- tire pondering this or that item - proving once again that not everybody flocks to the beaches on a hot day. Temperatures at near 90 degrees and air soaked with debilitating moisture didn't stop little Lenroy Whitting- ham of the island of Ja- maica from skipping around the yard determined to sample all the toys therein displayed, while his mom, Karlene, and their Cape host, Melbourne Cragwell of Mashpee, tried to get him to focus. Meanwhile, a handful of male volunteers was begin- ning to carry the racks and all items displayed outdoors back into the building by 3 p.m., when the facility closes. The cottage next to where St. Jude's Chapel stood until 1991 accommodates the departmentalization of clothing. It has several rooms for women, one or two for men, one for tod- dlers (Baby's Room) and one for older children and space for jewelry and knick- knacks. There are dressing rooms for men and women and mirrors hung hither and yon. There is storage galore in a house next door and in both cellars, one of which is Santa's Workshop for holiday items sifted through and stored for special sale events. And inside, women volun- teers, their cheeks flushed with the heat despite column fans in just about every room, go about their tasks of separating, fix- ing and hanging incoming clothing and keeping all in order as the chief boatswain keeps clear the decks. Where does one collect volunteers willing to give up those most precious com- modities -time and energy -to help others in need? For Mary Daly, beating cancer was the catalyst that propelled her several years ago to make major life changes. She had a success- ful typesetting and graph- ics design business when diagnosed with the illness. "I attended a faith healing service at St. Pius Church in Yarmouth and believe I was healed that day. I then went for an operation. I didn't need radiation or chemotherapy." When it was over, she sold her business and vol- unteered full-time for St. Vincent de Paul. "A lot of our volunteers have sto- ries (of recovery) like this, I think about a third from cancer alone." Others may have lost a spouse and are lonely. Most of them work as anonymously as the in- dividuals and families who benefit from their labors. And in classic "what goes 'round comes 'round" fash- ion, Daly said, "many of the people we help eventually get their lives in order and become ardent donors." One woman who stepped in the doorway on her way to tennis asked Daly, "How's the beast?" The question referred to an old truck donated to the organization by a former grateful client, including registration and insurance. "See what I mean?" Daly said. St. Vincent De Paul... CONTINUED FROM PAGE B:3 consumers and the general public regardingissues and concerns related to long- term care and facilitate public comment on laws, regulations, policies and actions; • Promote the develop- ment of citizens organiza- tions to participate in the program; • Provide technical sup- port for the development of resident andfamily councils to protect the well-being and rights of residents; and •Advocate for changes to improve residents' quality of fife and care. Resident's Rights Ombudsmen help resi- dents and their families and friends understand and exercise rightsthat are guaranteed by law, both at the federallevel and inmany states. Residents have the right to: • Be treated with respect and dignity; • Be free from chemical and physical restraints; • Mange their own fi- nances; •Voicegrievanceswithout fear of retaliation; • Associate and commu- nicate privately with any person of their choice; • Send and receive per- sonal mail •Have personal and medi- cal records kept confiden- tial • Apply for state and federal assistance without discrimination • Be fully informed prior to admission of their rights, services available and all charges; and •Be given advance notice of transfer or discharge. If your facility does not have an ombudsman avail- able or if you prefer to seek outside assistance contact: Massachusetts Long Term Care Ombudsman, Mary McKenna, State LTC Ombudsman , Massachu- setts Executive Office of Elder Affairs, 1 Ashburton Place/5th Floor,Boston,MA 02108-1518, 617-727-7750. National Long Term Om- budsman Resource Center, 1828 L Street , NW, Suite 801, Washington, DC 20036, 202-332-2275 Elder Services of Cape Cod and the Islands , 68 Route 134, South Dennis, MA 02660 , 508-394-4630. Attorney Michael Lavender special- izes in Elder law and is in private practice in Barnstable Village. Ombudsman Program... CONTINUED FROM PAGE B:3 well,"she said. "He willsing and he willjoke." Both Al and Dot recall that a special connection existed between them almost immedi- ately. "She took my hand as we walked across the street," Al remembered. "It sort oftouched methat shewouldtrust methat way right away." Forayear afterthey met,they werefrequently inone another's company."Welikesomanyofthe samethings,"saidAl."Including chocolate ice cream." In 2001 the couple married in the church where they'd met, holding their reception at the BarnstableSeniorCenterwhere Al attends classes on a regular basis. Because Dorothy's first weddingwastypical of that era, shewent"allout"whenmarrying Al. "If I had it my wajt, I would have had it out in a daisy field and invited everyone who could come," she said. While the eighty-something couple is certainly enamored with each other, forming a re- lationship hasn't always been easy. Dot acknowledges her initial insecurities. "He must be blindto allofmyshortcomings," she said. Naturally,finances wereacon- cern,giventhat theyhadsavings from their previous marriages that were allotted for their chil- dren. "Some folks don't want to get married because moneywill be aproblem,"saidAl."Wemade a decision right away and set asidemoneyfor the kids,"added Dot. "We set boundaries." "Youcan't go in saying you're going to get something money- wise,"continued Dot. "Yougoin becauseyouwanttobecomplete in your latter years." The two are careful to note, however,that agecanplayavery positive factor when it comes to love the second time around. "We'venever had an argument," said Al. "We've never had time for that." Added Dot, "We don't fight. When you're this age, you find that it's not important. Having a good relationship is impor- tant." Al appreciates having some- oneto dothingswith."Someone that you can enjoyyourself,"he said."It'snot sofun doingthings by yourself." For Dorothy, it's about the closeness."Wealldo not look as lovely as when we were young," she said. "The thing is that we all appreciate the companion- ship.Older people have to have confidence in knowing there's someone out there whoislonely for companionship." Tosome,alate-in-liferelation- ship canseem daunting.Forthe Renards, it is heaven on earth. "It gives you a purpose," said Dot. "It gives you a purpose to live every day." Seniors find heaven on earth...