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UPDATE:
By Paul Gauvin
pgauvin@barnstablepatriot.com
PHOTO COURTESY RAYL0VE FAMILY
OFFTO CHINA-Robert Raylove andsonJonathanwill
betravelingto Chinanextmonthfor moreexperimental
stem-cell therapy. Jonathan suffers from hypoxic
ischemic encephalopathy, brain damage caused by
a lack of oxygen from a near-drowning at age 4.
A few weeks ago the Patriot ran a
story about Jonathan Raylove of West
Barnstable, a 14-year-old with brain
damage from a near-drowning when he
was 4, and how his parents had been
taking him to Mexico for stem cell treat-
ment unavailable in the United States.
In the process of developing the story
and reading about stem cell research
and treatment, it was clear that some
scientists feel the United States is fall-
ing behind other countries in an en-
deavor many believe is the medicine of
the future, the panacea, the Holy Grail
of well being for many.
Then last week, Harvard Univer-
sity announced it was going to build
a 500,000 square foot science building
at its Allston campus, at the center of
which will be a state of the art stem cell
laboratory.
The irony of Harvard's announcement
is that just a few weeks before, Robert
Raylove, an acupuncturist and Jona-
than's devoted father, had expressed
a hope that someday his son could be
treated just an hour's drive away.
But a lot can happen in three weeks,
and now, instead of a closer treatment
facility like Harvard, the Rayloves are
going to carry Jonathan all the way to
China for pioneering stem cell treat-
ment that for them is the only hope of
reconstituting Jonathan's brain cells.
"We're leaving March 13," Raylove
said. "I'm staying a week with my
daughter then we have to get back for
work and school. My wife will remain
with Jonathan for a month."
Jonathan has hypoxic ischemic en-
cephalopathy, brain damage caused by
a lack of oxygen as the result of trauma.
He cannot see, chew, swallow, walk,
laugh. Neither Western medicine nor
traditional Chinese treatment holds
the promise of a cure as does stem cell
treatment, Raylove believes.
As a family -his wife, Edith, and their
daughter, Alanna -they are embarking
on cutting edge stem cell therapy in
China where the acute political-cultural
divide from the United States allows
for unfettered research and experiment
with a plentiful supply of fetal stem
cells.
"Chinese law allows for one baby per
family," Raylove notes. That results in
many abortions, he said, the products of
which are classified in China as medi-
cal waste from which fetal cells can be
harvested and used in research and
experimental treatment on Chinese and
foreign patients.
The Chinese option has raised the
Raylove family's hopes on several fronts.
"Jonathan will get five injections of
10 million stem cells over the month, or
a total of 50 million cells - 20 times the
number that he got in Mexico," Raylove
said.
In addition, stem cells from fetal
sources may have, the Chinese believe,
pluripotency - as do embryonic cells
-meaning they can differentiate into
any number of specific cells, unlike cell-
specific adult stem cells from umbilical
cords, which is what was being used in
Mexico, Raylove said.
Another difference between the ther-
apy in Mexico and China is that "the
cells will be injected directly into the
central nervous system" Raylove said, a
more direct and site specific route than
Mexico's intravenous treatment where
many of the cells "probably got lost in
the body."
The Raylove's are moot on the U.S.
government's refusal to support the de-
velopment of embryonic stem cell lines
but do believe that, "The US is much
more careful when it comes to experi-
mental research. We take fewer risks,
which is better science ... but people
suffering like us are willing to take
chances as long as there are no known
side effects, as long as it can't hurt.
"We are doing something important,
too. We can report changes in our son's
condition, if any, even if it's only clinical.
Passing on results of any clinical trials
- as opposed to labs and rats -may be
important for the U.S to catch up when
it eventually allows human trials, which
I think are at least two to five years
away.
"This is all new research (in China).
They haven't treated many people yet
and I don't know for sure what they will
suggest, Jonathan's injury was so long
ago."
The expense borne by the family is
"...rough . It's killing us."
The family has formed the Jonathan Brain Recov-
ery Organization, or JBR0,to help care for children
receiving stem cell treatments. The organization can
be contacted by email jbrorg@comcast.net or phone,
508-362-2127.
Barnstable boy, family head i
for China stem cell treatment
Barnstable Village
Civic Association
meets Monday
Asst Town Manager Paul
J. Niedzwiecki and other
town officials will address the
Barnstable Village Civic As-
sociation Monday evening on
the proposal to discharge up
to 500,000 gallons of wastewa-
ter per day on 6.9 acres of the
town'sMcManusproperty next
to the Hyannis Golf Club.
The meeting begins at 7
p.m. at the BWB Elementary
School.
All Barnstable Village and
Cummaquid residents are
encouraged to attend.
Cotuit Bird &
Garden Club meet
March 8
The Cotuit Bird and Gar-
den Club will meet at 10
a.m. at the Cotuit Library on
March 8. Master Gardener,
Will Clarke will speak about
water gardens. The public is
welcome.
3 Women, A Plane,
And 12,000 Miles
Jean Turnbull and Pris-
cilla Myers will speak to the
Friends of the Cotuit Library
about their experiences as
participants in the London-
to-Sydney Air Race 2001 in
their twin engine plane.
The third member of the
crew was Margaret Ringen-
berg, a former Women's Air
Force Service Pilot in WW II.
Reservations for the March
15 luncheon can be made
between March 1 and 13 by
calling508-420-5054. Members
$10 non-members $12.
West Barnstable to
dedicate new truck
In a traditional "wet down"
ceremony,theWestBarnstable
Fire Department plans to
dedicate its latest addition.
On Sunday,Feb.26,the new-
to-the-department "Quint"
The 2002 Quint, so named
because it serves five pur-
poses, was found in Florida
for $350,000,$300,000 of which
camefrom afederal grantpro-
gram. The WBFD purchased
the truck from adealership in
Alabama and if new, it would
cost between $500,000 and
$600,000.
It will replace the depart-
ment' s 1967 pumper. Be-
sides being 40 years old and
increasingly inefficient , the
department'sinsurance com-
pany would no longer cover
the vehicle.
Thenewtruckcarriesacrew
of six firefighters, 400 gallons
ofwater,hasa75'aerialladder
and can pump 1500 gallons
of water per minute. It has a
short single axel wheelbase
that makes it better suited
to getting in and out of tight
driveways and narrow private
roads,than most larger ladder
trucks. The new truck will
be designated as Ladder 297
(L-297).
The "wet down" ceremony
is scheduled for 2 p.m. at the
fire station and the public is
invited.
New England
Authors &
Illustrators I Have
Published
David Godine, one of Bos-
ton's top ranking book pub-
lishers, speaks at the Oster-
ville Free Library on the New
England authors and illustra-
tors he haspublished.Thetalk
is scheduled for March 2 from
11 a.m. to 12:30 p.m. Light
refreshments willbe served at
10:30 am in the North Room
at the Osterville Library. Ad-
mission is free. Please call
for reservations as seating is
limited, 508-428-5757.
IVILLAGE BRIEFS ~
CONTINUED FROM PAGE B:1
Sinclair named to
Cornell Dean's List
Erin Sinclair of Centerville
made the Dean's List at Cor-
nell University for the fall
semester. She is studying at
Universita Cattolica in Milan,
Italy this spring.
WB student
earns honors at
Northeatsern
Brandon Gillespie of West
Barnstable made the Dean's
List for the fall semester at
Northeastern University. He
is the son of Cheryl Gillespie
of West Barnstable.
Ross and North
graduate from BU
HeatherRossofBamstable
graduated from Boston Uni-
versity this January where
she received her M.S.W. in
SocialWork.Alsograduating
was Marstons Millsresident
SuzanneNorthwhoreceived
a B.A. in Sociology.
^PEOPLE ^
=^
=
CONTINUED FROM PAGE B:2
32 nieces and nephews.
A memorial service was held at Van-
Gorden Manor (Hilltop), Johnson City,
N.Y.Burial was private.
Memorial donations may be made
to Alzheimer's Services of Cape Cod
& the Islands, 895 Mary Dunn Road,
Hyannis, MA 02601; or to the charity of
one's choice.
Thomas Turley, 80
Osterville - Thomas Turley, 80, a re-
tired newsman, died Sunday, Feb. 12,
2006 at his home.
Mr.Turley enlistedintheMarine Corps
in 1944shortly after turning 18and with-
out waiting for graduation from Boston
English High School. After the war, he
earned abachelor'sin 1948from Colgate
University in Hamilton, N.Y.
In 1950 he received a master's from
Boston University's School of Journal-
ism and started a career as a reporter in
1950 at the Pawtucket Times in Rhode
Island.
Mr.Turleyjoined theAssociated Press
in 1951 in Kansas City and transferred
to a capital news bureau in 1956 in Al-
bany,N.Y.
In 1961 he left the news service and
joined the New York Herald Tribune as
a news editor, remaining there until the
paper folded in 1966.
He then went into network news, first
at OBS News in 1967 and to NBC News
in 1975 where he was national editor
before joining the Today program as a
news producer from 1981 to 1987.
Survivors include two sons, Jeffrey R.
Turley of Verona, Wis., and Thomas R.
Turley of Saratoga Springs, N.Y.;three
brothers,LeoTurley ofQueensburg, N.Y,
DavidTurley of Florida and Brian Turley
of Melrose; his dear friend , Nancy Mey-
mand of Osterville;three grandchildren;
and many nieces and nephews.
A funeral service was held at John-
Lawrence Funeral Home in Marstons
Mills.
Burial wasin Massachusetts National
Cemetery in Bourne.
Peter Hansen Toennies, 62
West Barnstable - Peter Hansen
Toennies, 62, died Monday, Feb. 13,
2006 at his home.
Mr. Toennies was born in Jersey
City,N.J,and raised in West Hartford ,
Conn., where he graduated from Co-
nard High School. He also attended
Norwich University in Northfield , Vt.
He worked in sales at Xerox Corp.
for nearly 30 years, moving to North-
ern Virginia to head training of the
Xerox field sales organization in
North America. In 2000, he began his
own sales training consultancy, PHT
Group, Inc.
In 2002,hemoved to the Cape, where
he enjoyed his historic home and his
antique Corvette. A travel and pho-
tography enthusiast, he traveled the
world throughout his life, chronicling
and sharing his journeys through his
art.
Survivors include three children,
Amanda Toennies of Ocracoke, N.C.,
Jane (Toennies) Sacco of Oakland,
Calif., and Craig Toennies of Boul-
der, Colo.; a sister, Nancy Hopkins
of Barnstable; three nieces; and a
grandnephew.
A memorialservice was held at West
Parish Congregational Church in West
Barnstable.
Memorial donations may be made
to American Heart Association, 20
Speen St., Framingham, MA 01701;
or the charity of one's choice.
f
Louise Walker, 94
West Barnstable -Louise Walker, 94,
a resident of West Barnstable for many
years, died Jan. 30, 2006.
She was raised and educated in Indi-
ana and graduated from the University
of Wisconsin and Wisconsin Library
School.
She worked for the Columbia Uni-
versity Library and headed the medi-
cal library at Northwestern University
Medical School.
After moving to New England, she
became head librarian at the Fletcher
School of Tufts University. During this
time, she also operated a poultry farm
in Ashland.
She moved to Cape Cod in 1973 and
became a member of St. Mary's Epis-
copal Church, Barnstable , and West
Barnstable Garden Club.
Memorial services will be at a later
1 date.
Essie J. Webb, 82
Hyannis -Essie J. (Neely) Webb,82,died
unexpectedly Monday, Feb. 13, 2006.
She was born and raised in Charlotte,
N.C.
A Cape Cod resident since 1980, she
previously lived in New Jersey.
She was a caretaker for the elderly and a
member of New Hope Full Gospel Baptist
Church, where she was a deaconess. She
also worked for Meals on Wheels and the
NOAH Shelter.
Survivorsinclude ason,DarryleMoore of
Bourne; 10 grandchildren; 10 great-grand-
children; three nieces; and a nephew.
She was also the mother of the late
Jennifer M. Lawson and the late Warren
T.Moore.
A memorial service was held Sunday at
New Hope Full Gospel Baptist Church in
Hyannis.
/»
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