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February 3, 2006     Barnstable Patriot
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February 3, 2006
 
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~ \ ^ j Advanced Eye Caref or the Entire f amily mf. * ¦ . **/ l«A7 <¦*«¦¦ j. i^L^L^L^L^L^L^L^LW-IXwj»j KflJWB 1%I *^^TMT U^ ^m^WlJI I Ba)JBBJ^L^L^L^L^L^B ¦HPr AT^M flft I WPPVTI MWPR IV9V9I ^t^B\ A^ l I ' BOARD CERTIH^D OPHTHALMOLOGIST ¦ " IT ^BL^W_ — I * • Annual Routine Lxams • Prompt & Convenient R- ft *¦*-* tfNKkflHP ll * G('"(T "' Opthalmology Earl y Evening Appointm ents ¦S j^ /^' ^nP ' a^H L • Glaucoma & Cataract Consultation • AcceptingNew Patients ^^^ft- M ** ' ^ J» * AFFILIATED WITH... BP^WWWWPPWPWWWi ' Eflr Infirmary. B j i j i l f l Sy^^jAlfeB Vldiifll School, Ambulatory Sur^n/ amiLaser (. 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Yarmouth 282 Route 130 Sandwich Appointments -1-877-331-3937 Additional O ff ice Locations Plymouth, Pembroke, Hingham, Weymouth, Quincy, Milton, Brockton www.eyehealthservices.com 20 Years of Exp ert Eye Care on Cap e Cod Heart Day... CONTINUED FROM PAGE 6:3 ris,development coordinator for Cape Cod's branch of the American Heart Association. The AHA reports that women make up 53percent of the car- diovascular deaths in Massachusetts. When research into women's heart disease began "the reality of heart diseasein women was not a conscious thing," Morris said. To combat this lack of knowledge, the AHA, along with local sponsors Willy's Gym and the Cardiovascular Specialists,willhost the second annual Go Red for Women Luncheon at the Chatham Bars Inn on Feb. 4 to raise money and awareness for women's heart disease. "It clearly is a worthy cause," said Dr.Nandita Scott, cardiologist at Car- diovascular Specialists Hyannis. Co-chaired by Scott and Carol Pen- field of the Chatham Health Improve- ment Center, the luncheon is $175 per person and willfeature health screen- ings auctions and speakers. AllAHA events include educational components , said Pauline Philie , President of the American Heart As- sociation and Cape Cod Hospital's director of cardiovascular quality and outcomes. Members of the local AHA are "al- ways looking to do our part in public education," she said. The idea that began the Go Red for Womeninitiative isbased on the AHA's long-standingthree-pronged mission: education,research, and development. Thisgoalbecameeven more important when the AHA learned that "women were getting underrepresented in heart disease," said Morris. Though the Go Red for Women movement was only created three yearsago,it isalready gainingsupport in many areas around Cape Cod. Last year, on national Go Red for Women day, Cape Cod Hospital was a "sea of red," said Philie. The luncheon is only one part of the AHA'smission to end ignorance about heart disease.Both Cape Cod Hospital and the Cape and Islands AHA strive to educate everyone, not just women, about the dangers of heart disease. "It affects both sexes. It affects young and old," said Philie. In order to teach both healthcare providers and patients how to "make a difference in their lives," Cape Cod Healthcareorganized acardiovascular awareness committee, she said. Likewise, the AHA organizes infor- mationalprograms for both adults and children. One such program that both Morris and Philie hope people will en- dorse is the AHA's heart walk on May 21. The walk is in honor of Cape Cod Hospital nurse Rick Cody, who died suddenly of a heart attack. In addition to learning more about heart disease and taking advantage of the AHA's programs, both men and women "should know that heart disease is largely preventable ," said Scott. "They should have screenings for blood pressure , cholesterol , dia- betes ... and exercise at least three days a week for 30 minutes." However, despite more information about women's heart disease than ever before, more women are still scared to report their symptoms or learn more, and instead risk dying of embarrassment , said Morris. Both Philie and Morrisunderstand' that heart disease is, "one of the diseases people fear the most," said Philie. However, they both believe that learning more can help allay the fear people might have of heart disease. "Out of the scare comes changes in behavior and a sense of hope ," said Morris. For information on the luncheon call 508-255- 6826 or 508-778-1829. HEALTHREPORT: Free workshop for parents The Cape Organization for Rights of the Disabled (CORD) is sponsoring a free workshop for parents by the Massachusetts Ad- vocates for Children on the special education rights of students with Autism Spec- trum Disorder Feb. 15 at 7 p.m. at CORD, 1019 lyan- nough Road, Route 132, in Hyannis. RSVP by Feb. 8, 508-775-8300. Melanoma Foundation looking for volunteers The Melanoma Education Foundation is seeking vol- unteers to raise melanoma awareness in the community. Needed are a grant writer, outreach coordinators, and a videoconferencing technical advisor. Call 978-535-3080 or go to http://www.skin- check.org . Support at Independence House Independence House in Hyannis sponsors a domes- tic violence support group at the office in Falmouth Hospital on Mondays at 6:30 p.m.; a children 's empower- ment group on Wednesdays at 5:30 p.m. at the office in Hyannis; and a self-esteem focus group on Thursdays at the Hyannis office at 5:30 p.m. Call 508-771-6507. Veterans, take note The Department of Vet- erans Affairs is offering prescription refills over the Internet via theVA's MyHeal- theVet,a personal on-line re- cord system for veterans that tracks not only prescriptions but health records, insurance and more. For information on these services, goto www. myhealth.va.gov HIV/AIDS testing, counseling The Cape Cod Free Clinic & Community Health Cen- ter offers free, confidential testing for HIV/AIDS. The tests are available at the health center 's Falmouth and Mashpee offices. Ap- pointments are required; call 508-540-2949. Health and well- being programs for winter Cape Cod Healthcare's Center For Health Educa- tion offers classes such as "Kick Butts," a stop-smok- ing class; "Heart Healthy Eating;" a walking program; techniques for relaxation of the mind and body; su- permarket shopping; and more. To register, call 877- 729-7200 or go to www. capecodhealth.org. Hospice education To learn more about just what a hospice is and to be informed about end-of-life services , you can schedule an informative program for your organization presented by Hospice & Palliative Care of Cape Cod. Call 508-957- 0200, ext. 306. A little time for yourself Stop by the Visiting Nurse Association in Dennis on Route 134 to take part in the Young at Heart exercise program. A minimal fee is charged and a doctor's note is necessary. The program is also offered at the Brewster facility. Call 877-267-7700. Driver Rehabilitation Program Those whose driving ability has been compromised by illness, injury or normal aging are invited to take part in the roadSMART Driver Rehabili- tation Program being offered through the Rehabilitation Hospital of the Cape and Islands in East Sandwich. Call 508-833-4000. Women's free health screening The Women 's Health Net- work of the Visiting Nurse Association of Cape Cod in cooperation with local health care providers is offering free breast and cervical cancer screening services to uninsured and underinsured, low-income women age 40 to 64. Call 888-557-9994. New access center telephone line Cape Cod Healthcare 's mental health arm, Behav- ioral Health Services of Cape Cod Healthcare, has a one- stop telephone line (888- 986-4BHS) allowing easier access to comprehensive mental health services. The service offers help for those dealing with anxiety, depres- sion, substance abuse, and other concerns. VNA has home health technology The Visiting Nurse As- sociation of Cape Cod of- fers in-home telemonitoring technology. The Honeywell HomMed monitors collect vital signs including heart rate, blood pressure, oxygen saturation and body weight, all in three minutes. Call 800- 631-3900. Adult exercise class in Hyannis Get in shape by joining Live for Life classes offered by the YMCA Tuesdays and Thursdays from noon to 1 p.m. at the Barnstable Senior Center, 825 Falmouth Road in Hyannis. Admission is $25 per month. 6A cottage a set for stem cell drama... CONTINUED FROM PAGE B:1 the Raylove family's lexicon. There is asmallsign outside Raylove's modest Route 6A home across from the Crystal Pineapple Gift Shop. It says simply,Acutherapy. He treats clients in an extension of the cottage with a door at the end of ahallway connectin gto the living quarters. He uses the door often between clients during the day to check on Jonathan , his wife and daugh- ter, Alanna, 10, who attends St.FrancisXavier Preparatory School in Hyannis. The Rayloves departed L.A. for the Cape six years ago. "My wife has family in Mas- sachusetts and we had doubts about raising our daughter in L.A. She really didn't have a childhood as it is, since my wife and I have been preoc- cupied with Jonathan." Raylove pauses, then adds. "I think Jonathan 's had more acupuncture and herbal ther- apy than anyone I know." Traditional Chinese thera- pies and western medicine have not found the profoundly complex path to brain recov- ery. So the Rayloves have turned to stem cell therapy, a proposition , Raylove said, that, while holding out hope, is very expensive because the U.S. prohibits stem cell injections. (The cells are injected into patients in anticipation they will replicate afflicted tissue and thus return the tissue to normal function.) As a result , Raylove flies Jonathan to SanDiego "about every six months is best" where doctors are doing the only brain recovery stem cell research and treatment in the U.S. The trip, he says, is difficult and risks Jonathan's health. "I take hold of his upper body and a friend takes the legs and we carry him on he plane," Raylove said. "Once we are in San Diego, the doc- tors drive Jonathan across the border into Tijuana where the injection takes place. This is the routine for many stricken children ," he said. The total cost , trip and treatment , averages about $17,000. "There is no second home for us. no stock portfolio ," Raylove said without regret but as a point worth making because be believes it doesn't have to be that way. "What is unfortunate is that this is a non-controversial treatment. The cells are from umbilical cords that otherwise become medical wastes. They're not embryonic. Many laborato- ries in the United States already produce the same high-quality stem cells used in foreign countries to treat Americans." Embryonic stem cell re- search and treatment is cur- rently the center of aU.S.reli- gious/political controversy. Raylove offers a cup of tea. "We long for the day we can just drive to Boston for the same treatment," he said. Outside is a van equipped with a chair lift. It's only an hour'srideto Boston. It would be so much more convenient , safer for Jonathan and less expensive for the family. Despite the current reli- gious-political impediments, biologist Douglas Melton of Harvard, quoted in National Geographic (July 2005), be- lieves this will be the century of cells, suggesting atransfor- mation in medicine. Jonathan Raylove and his parents are willing pioneers, believing - what else is there but belief? -that anything is possible. Faced with the financial demands and political bar- riers to stem cell treatment, the Rayloves have formed an organization called JBRO, fjbrog@aol.com or 508-362- 2127) the Jonathan Brain Recovery Organization. Its goals are to change the law to allow greater stem cell research and treatments in this country, and seek dona- tions for the afflicted who cur- rently need to cross borders for treatment. And that's what's happen- ing inside a low profile West Barnstable cottage where undying hope and unyielding effort have teamed to retrieve the life of a child.